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Paralysis by Sequestration and the Medical Revolution

Reporter: Larry H Bernstein, MD, FACP

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http://pharmaceuticalintelligence.com/2013/04/03/paralysis-by-s…cal-revolution/

Dysfunction and the Medical Revolution

http://www.genomeweb.com/blog/dysfunction-and-medical-revolution
April 02, 2013
The federal sequestration is cutting back or halting grants that fund “potentially groundbreaking” personalized medicine research funded by the National Institutes of Health, Institute for Systems Biology President Lee Hood opines. Taking his pen to the pages of The Hill, Hood writes that political three-way fisticuffs between lawmakers in both houses and the White House that led to the sequester — an across-the-board five percent whack to all agency budgets — could imperil advances in personalized medicine research that ISB is pursuing.
Hood praises the promise of what he calls P4 medicine, the convergence of new big data and genomic technologies to develop “medicine that is predictive, personalized, preventive, and participatory.”
The forward march of P4 will bring about a new type of medicine, Hood writes, that will improve care through diagnoses and targeted therapies. It also will save money in the long run because new and better treatments and predictive medicine will “reduce the skyrocketing costs of healthcare” and help create new “wellness sector” markets and companies that don’t yet exist, he says.
“In 1986, the automated DNA sequencer I invented was first brought to market, paving the way for the Human Genome Project completed in 2003. In 2010 alone, human genome sequencing activities generated $67 billion in US economic output and created 310,000 US jobs,” he says.
Hood doesn’t want to see a dysfunctional political culture on Capitol Hill hinder the advance of these technologies, markets, and medical innovations.
“On the 10th anniversary of the completion of the Human Genome Project, we can’t let the ongoing tug-of-war in Congress over spending priorities threaten the revolutionary work that is taking place in medical science,” he writes.
Submitted by Scott_K on Tue, 04/02/2013
Couldn’t agree more. I was just up on the Hill meeting with Representatives, and they are sadly bogged down in the sequester. Meanwhile, Medicare has suspended reimbursements for molecular diagnostic testing. Congress is missing an entire paradigm change where the art of patient care has led to the rapid emergence of Personalized Medicine. Without appropriate funding, we will not be able to educate patients, clinicians, reimbursement directors, and Congress themselves on the astounding advancements that have been made in personalized medicine. We can perform whole genome sequencing to identify clinically relevant mutations in individual patient’s tumors- morally, this technology could and should be available to all late stage cancer patients immediately. Frustratingly, we lack the political leadership and vision. In an environment where jobs for many experienced, bright scientists are so desperately needed, the failure of governmental leadership has led to the siphoning off of technological development and jobs to other more perceptive countries. This is a mess that can be corrected in no time with appropriate leadership from the three branches that Dr. Hood mentions. Here’s hoping that Dr. Hood’s communication will open some eyes.

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A medical record folder being pulled from the ...

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E-Medical Records Get A Mobile, Open-Sourced Overhaul By White House Health Design Challenge Winners

 

Reporter: Larry H. Bernstein, MD, FCAP

Designer Fund and the White House’s Health Design Challenge

Larry H. Bernstein, MD, FCAP

The winners of Designer Fund and the White House’s Health Design Challenge have created beautiful, comprehensible, mobile versions. Soon, a combination of the best of the submissions will be open-sourced and implemented as the record format for the Veterans Affair Administration and its 6 million patients.

The challenge was launched in November by the White House and a new community of philanthropic angel investors called Designer Fund. Directed by five-year Facebook designer Ben Blumenfeld and 500 Startups founding team member Enrique Allen, Designer Fund aims to advise and back designer-led startups with a positive social impact.

The Health Design Challenge to redesign the electronic medical record (EMR) was a huge success, pulling in

  • 230 submissions
  • compared to 80 submissions in a previous White House health challenge.

Blumenfeld says that “from a quantity standpoint it was amazing, but from a quality standpoint too. People thought through all sorts of ways for the electronic medical record

  • to expand and live on mobile, and
  • have preventative care in there too.”

The overall winner  solved many of the biggest problems with the existing EMR. Those include

  • medication plans that are tough to understand,
  • unintuitive formatting,
  • impersonal statistics, and
  • the general feel of a decades-old print-out.

It will be the basis of the open-sourced final version of the downloadable medical record that other healthcare providers could adopt.

Nightingale creates an obvious hierarchy for all your health info, and uses styling to make it easy to read.
Patients are shown their statistics on a scale from concerning” to “doing well instead of as raw numbers

Rather than only showing your latest lab results, Nightingale puts them in context of your past tests to show how you’re trending. That’s critical, because

  • if your latest results says your cholesterol is too high but
  • the trend shows it’s coming down quickly,
  • you’re actually taking the right steps and shouldn’t make drastic changes.

Graphical timetables in Nightingale make it obvious when to take which medications. Nightingale is

  • accessible from mobile so
  • you can always check your dosage schedule,
  • which will help people make sure they take the meds on schedule.
  • set email and phone alerts to remind you it’s pill-popping time.

Mobile was a big theme among the top submissions.

Studio TACK, which took second place,

  • laid out ailments on a body map that could be viewed on your phone.

Josh Hemley’s M.ed won best medication design by creating a browsable deck of mobile medicine cards.

The challenge’s winners will split $50,000 in cash. Beyond that, Blumenfeld says healthcare companies he’s talked to are calling the winner’s showcase

  • “the perfect place to recruit from.”

But hopefully the winners see the real prize is helping 6 million VA patients and more truly understand their health

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