NIH announces May 6, 2018 as national enrollment date for All of Us Research Program to advance Precision Medicine

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NIH announces May 6, 2018 as national enrollment date for All of Us Research Program to advance Precision Medicine

May 1, 2018 by 2012pharmaceutical

NIH announces May 6, 2018 as national enrollment date for All of Us Research Program to advance Precision Medicine

Reporter: Aviva Lev-Ari, PhD, RN

On May 6, the National Institutes of Health will open national enrollment for the All of UsResearch Program(link is external)

“The All of Us Research Program is an opportunity for individuals from all walks of life to be represented in research and pioneer the next era of medicine,” said NIH Director Francis S. Collins, M.D., Ph.D. “The time is now to transform how we conduct research — with participants as partners — to shed new light on how to stay healthy and manage disease in more personalized ways. This is what we can accomplish through All of Us.”

By partnering with 1 million diverse people who share information about themselves over many years, the All of Us Research Program will enable research to more precisely prevent and treat a variety of health conditions.

“All of us are unique, but today we live mostly in an era of ‘one-size-fits-all’ medicine,” said Eric Dishman, director of the All of Us Research Program. “I’m alive today because of precision medicine and I think everyone deserves that same opportunity no matter the color of your skin, your economic status, your age or your sex or gender. In other words, it will truly take all of us.”

About the All of Us Research Program: The mission of the All of Us Research Program is to accelerate health research and medical breakthroughs, enabling individualized prevention, treatment, and care for all of us. The program will partner with one million or more people across the United States to build the most diverse biomedical data resource of its kind, to help researchers gain better insights into the biological, environmental, and behavioral factors that influence health. For more information, visit www.JoinAllofUs.org(link is external) and www.allofus.nih.gov.

Community-based launch events

On the program’s May 6 launch date, the All of Us Research Program will host special events(link is external) in diverse communities around the country, including:

Birmingham, Alabama
Chicago
Detroit
Kansas City, Missouri
Nashville, Tennessee
New York City
Pasco, Washington

People also may take part in social media activities (#JoinAllofUs) or tune in at https://Launch.JoinAllofUs.org(link is external) to watch speakers across the country talk about precision medicine and the power of volunteering for research.

To learn more about the program and how to join, please visit www.JoinAllofUs.org(link is external).

“All of Us” is a registered service mark of the U.S. Department of Health & Human Services (HHS).

SOURCE

https://www.nih.gov/news-events/news-releases/nih-announces-national-enrollment-date-all-us-research-program-advance-precision-medicine

What is the All of Us Research Program?

All of Us is a new research program from the National Institutes of Health (NIH). The goal is to advance precision medicine. Precision medicine is health care that is based on you as an individual. It takes into account factors like where you live, what you do, and your family health history. Precision medicine’s goal is to be able to tell people the best ways to stay healthy. If someone does get sick, precision medicine may help health care teams find the treatment that will work best.

To get there, we need one million or more people. Those who join will share information about their health over time. Researchers will study this data. What they learn could improve health for generations to come. Participants are our partners. We’ll share information back with them over time.

How It Works

Participants Share Data

Participants share health data online. This data includes health surveys and electronic health records. Participants also may be asked to share physical measurements and blood and urine samples.

Data Is Protected

Personal information, like your name, address, and other things that easily identify participants will be removed from all data. Samples—also without any names on them—are stored in a secure biobank.

Researchers Study Data

In the future, approved researchers will use this data to conduct studies. By finding patterns in the data, they may make the next big medical breakthroughs.

Participants Get Information

Participants will get information back about the data they provide, which may help them learn more about their health.

Researchers Share Discoveries

Research may help in many ways. It may help find the best ways for people to stay healthy. It may also help create better tests and find the treatments that will work best for different people.